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Patients Support Associations, Associations Or Organizations

PSPA - UK charity supporting people living with PSP & CBD

PSPA is a UK charity dedicated to providing support to individuals living with PSP and CBD. As a Patients Support Association, PSPA strives to improve the lives of those affected by these conditions through various programs and initiatives. Their work is crucial in the field of healthcare and they are recognized as one of the leading Associations Or Organizations in the UK. PSPA is committed to making a difference in the lives of patients and their families and is a valuable resource for anyone seeking support and information.

Introduction to PSPA UK charity supporting people living with PSP & CBD

PSPA is a UK-based charity that aims to support people living with Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD), as well as their families and caregivers. The company was founded in 1994 by the family of a person with PSP, who recognized the need for more support and information for those affected by the condition. PSPA is unique in that it is one of the few Patients Support Associations that focuses solely on PSP and CBD.

Services & products

PSPA offers a variety of services to support those affected by PSP and CBD, including a helpline, information resources, local support groups, and a network of specialist nurses. The company also funds research into the conditions and works to raise awareness of PSP and CBD. Customers can purchase merchandise from the PSPA online shop, with proceeds going towards supporting the charity's work.

Location

PSPA is headquartered in Milton Keynes, a large town in Buckinghamshire, England. The area is known for its modern architecture and vibrant arts scene, with numerous galleries, theaters, and music venues. There are several cafes and restaurants in the area, as well as a shopping center. The nearest public transportation options to PSPA's office are Milton Keynes Central railway station (0.7 miles), The Point bus stop (0.2 miles), and Midsummer Boulevard West bus stop (0.2 miles).

Benefits

Customers should choose PSPA because of the charity's focus on PSP and CBD, as well as their commitment to providing comprehensive support to those affected by these conditions. PSPA is also unique in that it is run by a team of dedicated volunteers who are passionate about making a difference in the lives of those affected by PSP and CBD.

Good to know

Customers should be aware that PSPA is a charity and relies on donations to fund its work. They should also know that while the company provides information and support, it is not a substitute for medical advice.

Reviews

Customers have praised PSPA for its helpful and informative resources, as well as its compassionate and knowledgeable staff. Many people have also expressed appreciation for the charity's focus on PSP and CBD, which can be difficult to find support for elsewhere. Overall, customers feel that PSPA is a valuable resource for those affected by these conditions.

Amenities

  • amenity
    counseling
  • amenity
    support group
  • amenity
    financial assistance
  • amenity
    education
  • amenity
    advocacy
  • amenity
    online resources
  • amenity
    mental health services
  • amenity
    referrals
  • amenity
    community outreach

FAQ

What benefits does your association provide to its members?

We offer a range of benefits to our members including access to support services, information resources, and educational materials. We also provide opportunities for members to connect with others who are affected by PSP & CBD through support groups and events.

What networking opportunities do you offer to members?

We offer various networking opportunities to our members including support groups, online forums, and social events. These platforms allow members to connect with others who are going through similar experiences and provide a sense of community and understanding.

Can you provide examples of successful initiatives or projects your organization has undertaken?

We have undertaken various successful initiatives and projects over the years, including fundraising events, awareness campaigns, and research initiatives. For example, we have raised significant funds to support research into PSP & CBD and have worked to raise awareness of these conditions among healthcare professionals and the wider public.

Can you provide references or testimonials from past patients?

We do have testimonials from past patients that we can provide upon request. These testimonials highlight the impact that our support services and resources have had on their lives and the valuable role that our organization plays in supporting those affected by PSP & CBD.

What is the process for joining and accessing support from your association?

To join our association, individuals can visit our website and complete the online membership form. Once registered, members will have access to our range of support services and resources. We also have a dedicated helpline that members can call for support and advice.

Reviews

  • Alison Tomlinson

    PSP Association have been so helpful and supportive to me while I was navigating my father's illness. Wonderful charity!

    27-05-2021

  • Political Confectionery

    27-05-2021

  • Orlando Gaul

    Fantastic Charity!

    27-05-2021

  • Stuart Town

    27-05-2018

  • Henry Scutt

    Great charity

    27-05-2017