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Patients Support Associations

Society for Mucopolysaccharide Diseases (MPS Society)

The Society for Mucopolysaccharide Diseases (MPS Society) is a Patients Support Association based in Amersham, England. They provide support and resources for individuals and families affected by mucopolysaccharide diseases. The MPS Society is one of many Associations dedicated to improving the lives of those with rare diseases.

Introduction to Society for Mucopolysaccharide Diseases (MPS Society)

The Society for Mucopolysaccharide Diseases (MPS Society) is a UK-based non-profit organization that was established in 1982. The company aims to provide support and information to patients and families affected by mucopolysaccharide diseases. MPS Society is unique in that it is run by patients, parents, family members, and friends of those affected by the disease, making it a compassionate and understanding community.

Services & Products

The MPS Society provides a variety of services to patients and their families, including support groups, information on medical research and treatment options, and access to a network of medical professionals. The company also hosts events and conferences to promote awareness of mucopolysaccharide diseases and to raise funds for research. Customers can also purchase merchandise from the MPS Society's online store, with proceeds going towards supporting the organization's mission.

Location

MPS House, the headquarters of MPS Society, is located in Amersham, England. Amersham is a quaint town in Buckinghamshire, known for its picturesque countryside and historic buildings. The town is home to a variety of small businesses, including cafes, pubs, and boutiques. The nearest public transportation options are Amersham Station (1.1 miles), Amersham Bus Station (0.3 miles), and Chalfont & Latimer Station (4.5 miles).

Benefits

MPS Society stands out in the industry by providing a community of support for patients and families affected by mucopolysaccharide diseases. The organization is run by individuals who have direct experience with the disease, making them uniquely qualified to provide empathetic and knowledgeable support. MPS Society is also dedicated to funding medical research to find a cure for mucopolysaccharide diseases.

Good to Know

Customers should be aware that MPS Society is a non-profit organization, meaning that all proceeds from merchandise sales and donations go directly towards supporting the organization's mission.

Reviews

Customers have praised MPS Society for the invaluable support and information provided to patients and families affected by mucopolysaccharide diseases. The organization's dedication to funding medical research and promoting awareness of the disease has also been commended. Overall, MPS Society is viewed as an essential resource for those impacted by mucopolysaccharide diseases.

Amenities

  • amenity
    counseling
  • amenity
    support group
  • amenity
    financial assistance
  • amenity
    education
  • amenity
    advocacy
  • amenity
    online resources
  • amenity
    referrals
  • amenity
    community outreach

FAQ

What types of support services do you offer to patients?

We offer a range of support services to patients with mucopolysaccharide diseases, including information resources, emotional support, advocacy, and networking opportunities. We have a team of experienced professionals who provide expert advice and guidance to patients and their families.

How do you ensure confidentiality and privacy of patient information?

We take patient confidentiality and privacy very seriously. We follow strict data protection policies and procedures to ensure that patient information is kept secure and confidential. We only share patient information with relevant healthcare professionals with the patient's consent.

Are there any fees associated with accessing your services?

There is no charge to become a member of the MPS Society. We provide our support services free of charge to all members. However, we do rely on donations and fundraising to continue our work and support more patients and families.

Can you provide references or testimonials from past patients?

Yes, we can provide references and testimonials from past patients and their families. We have a range of case studies and patient stories on our website, as well as quotes and feedback from members who have used our services. We are also happy to put patients and families in touch with each other for peer support.

What is the process for joining and accessing support from your association?

To join the MPS Society, patients or their families can fill out an online membership form on our website or contact us directly for a paper form. Once registered, members can access our range of support services, including our information resources, advocacy support, and networking opportunities. We also hold regular events and workshops for members to attend.

Reviews

  • Janine Caswell

    29-05-2021

  • TheMateymate

    Always supportive, a great charity for families suffering from MPS and related diseases.

    29-05-2018

  • adil bukhari

    Run by a dedicated and caring team who are faultless. Thank you to all the staff.

    29-05-2018

  • Dewinder Bhachu

    29-05-2017